ABP AMERICANBIOETHICS PROJECT

Items

• Jonathan M. Mann — Founding Director of the François-Xavier Bagnoud Center for Health and Human Rights

  Jonathan M. Mann became the first director of the François-Xavier Bagnoud Center for Health and Human Rights in 1993. Albina du Boisrouvray founded and endowed the Center.
• Vanessa Northington Gamble — Chair of the Tuskegee Syphilis Study Legacy Committee

  Vanessa Northington Gamble chaired the Tuskegee Syphilis Study Legacy Committee during its 1996 deliberations and advocacy leading to the May 16, 1997 presidential apology. John C. Fletcher served as co-chair.
• AIDS in the World: A Global Report

  Edited by Jonathan M. Mann, Daniel J. M. Tarantola, and Thomas W. Netter for the Global AIDS Policy Coalition. Cambridge, Massachusetts: Harvard University Press, 1992. xiv + 1,037 pages. ISBN 0-674-01265-8 and 0-674-01266-6. All three individuals are coeditors; the Global AIDS Policy Coalition is the responsible organizational context, not a substitute individual author.
• Under the Shadow of Tuskegee: African Americans and Health Care

  Vanessa Northington Gamble. “Under the Shadow of Tuskegee: African Americans and Health Care.” American Journal of Public Health 87, no. 11 (November 1997): 1773–1778. DOI 10.2105/AJPH.87.11.1773. PMID 9366634. PubMed indexes the publication as a Journal Article, Historical Article, and Review.
• Presidential Apology for the USPHS Syphilis Study at Tuskegee

  President Bill Clinton apologized on behalf of the United States government to the surviving participants and families harmed by the USPHS Syphilis Study at Tuskegee. The ceremony followed sustained advocacy by the Tuskegee Syphilis Study Legacy Committee, whose 1996 final report urged a presidential apology and measures addressing the study's continuing harms.
• François-Xavier Bagnoud Center for Health and Human Rights

  The François-Xavier Bagnoud Center for Health and Human Rights was founded and endowed by Albina du Boisrouvray at Harvard in 1993. Jonathan M. Mann served as its first director and advanced its framework connecting health, dignity, and human rights.
• Tuskegee Syphilis Study Legacy Committee

  The Tuskegee Syphilis Study Legacy Committee first met January 18–19, 1996. Chaired by Vanessa Northington Gamble, with John C. Fletcher as co-chair, it urged a federal apology for the harms of the USPHS Syphilis Study at Tuskegee and proposed measures to address its continuing legacy.
• Jonathan M. Mann

  American physician and epidemiologist who helped establish the global response to HIV/AIDS and advanced an influential framework joining public health with human rights.
• Vanessa Northington Gamble

  American physician, historian of medicine, and public-health ethicist whose scholarship and public service examine racism in medicine, segregated health institutions, medical mistrust, research ethics, and health equity.
• Thomasine K. Kushner — Founder and Coeditor of Cambridge Quarterly of Healthcare Ethics

  Thomasine K. Kushner was a founder and coeditor of Cambridge Quarterly of Healthcare Ethics, first published by Cambridge University Press in 1992. No editorial end date is asserted.
• Richard A. McCormick — Rose F. Kennedy Professor of Christian Ethics at the Kennedy Institute of Ethics

  Richard A. McCormick held the Rose F. Kennedy Professorship of Christian Ethics at Georgetown University's Kennedy Institute of Ethics. The public date records only the independently supported end year, 1986; no uncertain starting year is published.
• Cambridge Quarterly of Healthcare Ethics

  Cambridge Quarterly of Healthcare Ethics. Cambridge University Press. First volume published in 1992. ISSN 0963-1801. Thomasine K. Kushner and David C. Thomasma were founding editors.
• Animal Liberation: A New Ethics for Our Treatment of Animals

  Peter Singer. Animal Liberation: A New Ethics for Our Treatment of Animals. New York: New York Review; distributed by Random House, 1975. xvii + 301 pages. ISBN 0-394-40096-8. LCCN 75-021637.
• The Contributions of Theology to Medical Ethics

  James M. Gustafson. The Contributions of Theology to Medical Ethics. Pere Marquette Theology Lecture 1975. Milwaukee: Marquette University Press, 1975. 116 pages. ISBN 0-87462-507-6. A related journal version appeared in Perspectives in Biology and Medicine 19, no. 2 (1976); this record describes the 1975 monograph.
• Arthur L. Caplan — Founder of the University of Pennsylvania Center for Bioethics

  Arthur L. Caplan founded the University of Pennsylvania Center for Bioethics in 1994.
• When Science Offers Salvation: Patient Advocacy and Research Ethics

  Rebecca Dresser. When Science Offers Salvation: Patient Advocacy and Research Ethics. New York: Oxford University Press, 2001. Print ISBN 978-0-19-514313-3. DOI 10.1093/oso/9780195143133.001.0001.
• The Case for Conserving Disability

  Rosemarie Garland-Thomson. “The Case for Conserving Disability.” Journal of Bioethical Inquiry 9, no. 3 (2012): 339–355. Published online July 18, 2012. DOI 10.1007/s11673-012-9380-0.
• University of Pennsylvania Center for Bioethics

  The University of Pennsylvania Center for Bioethics was founded in 1994 by Arthur L. Caplan as an interdisciplinary center for bioethics scholarship, education, and engagement with medicine and public policy.
• Arthur W. Galston — Coeditor of New Dimensions in Bioethics

  Galston coedited New Dimensions in Bioethics with Emily G. Shurr; Springer lists both editors with Yale University, New Haven, Connecticut.
• Paul Farmer — Cofounder of Partners In Health

  Farmer co-founded Partners In Health in 1987 with Ophelia Dahl, Jim Yong Kim, Todd McCormack, and Thomas J. White.
• Judith E. Heumann — Organizer and on-the-ground leader of the 1977 Section 504 Sit-in

  Heumann helped organize the San Francisco Section 504 protest and served as an on-the-ground leader during the occupation.
• New Dimensions in Bioethics: Science, Ethics and the Formulation of Public Policy

  Edited by Arthur W. Galston and Emily G. Shurr, both listed by Springer with Yale University, New Haven, Connecticut. New York: Springer. XX + 225 pages. Hardcover ISBN 978-0-7923-7249-3. DOI 10.1007/978-1-4615-1591-3.
• Partners In Health

  Partners In Health was founded in 1987 by Paul Farmer, Ophelia Dahl, Jim Yong Kim, Todd McCormack, and Thomas J. White to support community-based health work begun in Haiti.
• 1977 Section 504 Sit-in at the San Francisco HEW Offices

  Beginning April 5, 1977, disability-rights protesters occupied the San Francisco offices of the U.S. Department of Health, Education, and Welfare for nearly a month, demanding implementation of Section 504 regulations without weakening changes. The regulations were signed on April 28, 1977.
• Daniel Callahan — Cofounder of The Hastings Center

  Daniel Callahan co-founded The Hastings Center with Willard Gaylin in 1969.